Friday, January 6, 2012

Waiting to Change the World

Our second night in the hospital after Gabriel was born, a nurse came in and looked at him, and asked, "What is he hanging on for?" I didn't know either. I wondered how long he would hang on. I never expected us to be there, more than 24 hours after Gabriel's birth.

If I could go back I would tell her, "He's hanging on to change the world." Some people wait for the world to change; Gabriel waited to change the world.

This month marks the anniversary of Gabriel's initial diagnosis of anencephaly. I have not written much about D-Day -- Diagnosis Day -- but I plan to write our story and post if for the anniversary. It is a sad story, because the light was not yet shown to us.

But I know that things did get brighter. To help celebrate that, I invite followers of this blog to write to me here, at my gmail address (, or on Facebook, and tell me how you learned of Gabriel's story, and how he has changed your perspective. Please also let me know if I may share your story, even if anonymously, in a blog to be posted later.

I look forward to your responses.


  1. was it anencephaly blessings from above? or anencephaly angels? I think it was ABFA. still amazed he held on so long! what a trooper!

  2. I'm with Keri I think it was ABFA. Gabriel is a special little guy. I am always in awe of our babies who beat the odds and live for longer than what anyone expects. I know his story will inspire many moms who get this diagnosis and will give them hope to carry on when they don't think they can.

  3. I emailed you from, you ay share my email if you wish :)